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「"Wilfond BS "[Author]」の検索結果

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"If He Has it, We Know What to Do": Parent Perspectives on Familial Risk for Autism Spectrum Disorder.

Relationships help make life worth living.

Participant Engagement in Translational Genomics Research: Respect for Persons-and Then Some.

Consent for clinical genome sequencing: considerations from the Clinical Sequencing Exploratory Research Consortium.

The Relational Potential Standard: Rethinking the Ethical Justification for Life-Sustaining Treatment for Children with Profound Cognitive Disabilities.

Rethinking the "open future" argument against predictive genetic testing of children.

Ethical and Policy Considerations for Genomic Testing in Pediatric Research: The Path Toward Disclosing Individual Research Results.

Gaps in the Implementation of Shared Decision-making: Illustrative Cases.

Correction: Secondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study.

A case for expanding carrier testing to include actionable X-linked disorders.

Research on Medical Practices: Why Patients Consider Participating and the Investigational Misconception.

Research to Promote Longevity and Health Span in Companion Dogs: A Pediatric Perspective.

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