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「"Wilfond BS "[Author]」の検索結果

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Consent for clinical genome sequencing: considerations from the Clinical Sequencing Exploratory Research Consortium.

The Relational Potential Standard: Rethinking the Ethical Justification for Life-Sustaining Treatment for Children with Profound Cognitive Disabilities.

Rethinking the "open future" argument against predictive genetic testing of children.

Ethical and Policy Considerations for Genomic Testing in Pediatric Research: The Path Toward Disclosing Individual Research Results.

Gaps in the Implementation of Shared Decision-making: Illustrative Cases.

Correction: Secondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study.

A case for expanding carrier testing to include actionable X-linked disorders.

Research on Medical Practices: Why Patients Consider Participating and the Investigational Misconception.

Research to Promote Longevity and Health Span in Companion Dogs: A Pediatric Perspective.

Ethical Considerations for Unblinding a Participant's Assignment to Interpret a Resolved Adverse Event.

Secondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study.

The evolving landscape of expanded carrier screening: challenges and opportunities.

The Clinical Sequencing Evidence-Generating Research Consortium: Integrating Genomic Sequencing in Diverse and Medically Underserved Populations.

Research on Medical Practices (ROMP): Attitudes of IRB Personnel about Randomization and Informed Consent.

Approaches to carrier testing and results disclosure in translational genomics research: The clinical sequencing exploratory research consortium experience.

Including ELSI research questions in newborn screening pilot studies.

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